Kisses

This week has been a crazy one for the Diabetic Online Community. First we went through Crossfit’s attack on diabetics and the overwhelming response from the DOC that went largely ignored. Then we received good news in the form of the iLet dual-chamber Artificial Pancreas being announced at the Friends for Life 2015 conference. But today we took another devastating blow as Kycie Jai Terry passed away unexpectedly early this morning.

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Kycie’s story started on a Monday in January with this precious five year old complaining of a tummy ache. Doctors said she had the flu and sent her home. By Friday, she was having seizures and being life-flighted with a correct diagnosis – Type 1 Diabetes.

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Kycie suffered extensive brain damage but at every turn, she beat the odds and floored everyone’s expectations. Earlier this week, she was in the hospital but she was released earlier than expected due to the fact that she was recovering so well. It was an absolute shock this morning to see that she had passed away.

Through Kycie’s [mis]diagnosis, her parents via the Kisses for Kycie Facebook page were able to reach thousands of people with Kycie’s story and at last count, more than 20 children were correctly diagnosed with T1D directly from seeing posts from Kycie’s page.

I didn’t know Kycie personally, but seeing this brave warrior lose her fight hits close to home. As a victim of misdiagnosis myself that resulted in five months of physical, emotional, and psychological suffering, I feel connected to the Terry’s and their cause. All it takes is one finger poke. That $1 test can make all the difference.

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This is why I advocate. This is why I won’t be silent about this disease and everything it entails. Kycie could have been correctly diagnosed with Type 1 Diabetes on Wednesday when her mom took her to the doctor, rather than between seizures on Friday in the ER. She could have been a lovely, thriving five year old with a sub-par pancreas. Instead, she’s an angel now.

Please, know the symptoms. Request a finger poke.

Fly high, sweet girl.

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3 Comments

Filed under publicity, Real life

3 responses to “Kisses

  1. I was so sad to read this on Facebook this morning. My son was DKA at diagnosis. He was on vacation with his aunt and up until I read about her story, I didn’t know how serious DKA could be. I’m grateful for the medical help my son recieved, and tonight I will say a prayer for her and her family.

  2. Carolyn

    My son is Type 1 and this hit home hard. Last year in late January we were told he had a cold. This was a Thursday. By 2-2-14 we were told he was in severe DKA and lost him for 45min. Everything had stopped working! To save him they put him into hypothermia and he has lost both legs below the knee and almost all fingers, at 16. We are a year + out and i worry every day! His story is on facebook, Team Justyn Jenkins. My heart goes out to the family! She is a beautiful girl!
    We need the warning signs out there!! We need a cure!!

  3. My husband also dealt with misdiagnosis, actually his story is more of drs ignoring lab results (got to love military health care). It took getting denied for a new life insurance policy to get a diagnosis at all. Then he looked back and noticed multiple signs (30lb weight loss, frequent urination, extreme thirst, drowsiness, and nausea). 1.5 years later and we’re still trying to get everything figured out and under control.

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