#DBlogWeek: They Don’t Care About You

diabetesblogweek7

Check out my other #DBlogWeek posts here. Learn more about #DBlogWeek here.

Today is my fourth post for #DBlogWeek. Here’s today’s topic!

Most people who live with a chronic illness end up with a lot of experience when it comes to dealing with healthcare. How would you improve or change your healthcare experience? What would you like to see happening during medical visits with your healthcare team? How about when dealing with your health insurance companies? What’s your Healthcare Wish List or Biggest Frustration? Today is the day to share it all!

I’ve discussed the insane cost of my supplies here, and I’ve also written about how Obamacare saved my life. However, I’ve mentioned a little more quietly that I was hoarding supplies all last year.

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So here’s what I’ve discovered in my short time of being type 1 and dealing with lame adult things like insurance companies.

  1. Know what your deductible is and how long it will take you to meet it. Sometimes this can take a little estimating, but it’s worth figuring up if your work/insurance offers more than one deductible level like mine does. I went for the higher premium/lower deductible plan this year because I am able to hit a $1000 deductible in 2 months time – and that made the overall year’s cost lower than the seemingly cheaper $1500 deductible plan.
  2. Never stop hounding. Your supply company is at your mercy, not the other way around. If you know it’s authorized, or you’re supposed to have your shipment on a certain day and it isn’t there (AHEM, Solara), hound them. Email them every day. Call them twice a day. Ask for supervisors. This is your LIFE on the line – and you are your own biggest advocate. They don’t care about you, so you have to do everything in your power to get what you need.
  3. Know and accept that you may have to choose a job based on insurance. This is a reality we have to face. The state of American healthcare today means that we have to do whatever we can to have the best opportunity at survival – which means never ruling out the fact that your company may change their insurance to something completely terrible (as my husband’s did this last year) and you may need to look for a new job with better insurance. Dear America, please stop sucking and revolutionize healthcare a la Australia or Canada, please!
  4. If your medical care team isn’t working for you – switch! My initial misdiagnosis led me to seek other options for care, and that ended up being in my best interest. I found a doctor who trusts my judgment and listens to what I want, and we work together to find the best treatments for me. I can’t say enough about him and I wish everyone had a doctor as great as mine!

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I hope this helps someone in some way!

Read more posts for #DBlogWeek here.

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8 Comments

Filed under #DBlogWeek, Insurance

8 responses to “#DBlogWeek: They Don’t Care About You

  1. Gosh it makes me so sad that you guys with t1d over in the USA need to choose a job based on insurance, not on what you really want šŸ˜¦ that’s not ok!! Feel free to try Australia out for a little bit!

  2. Yes, great advice that if your healthcare team isn’t work for you, then switch. I spent too many years with the wrong doctor and now I’m so much happier!

  3. I had 4 endocrinologists in the first 18 months after my diagnosis before I found one I absolutely love. Before, I thought all doctors knew what they were doing and could help anyone. Thank goodness I kept pushing šŸ™‚

  4. yes to “if your med team isn’t working for you, switch!” i did that just last year and am SO much happier now for a whole host of reasons. šŸ™‚

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