About two weeks ago, I had the lowest blood sugar reading I’ve ever had, in the middle of the night. It was scary of course, but my husband had it under control and we survived. I posted a photo of my meter showing the number on my twitter and expressing my thankfulness for being alive. I then received a tweet in reply to it from a guy named Tony who is an ambulance driver. Tony and I proceeded to get into a heated argument over several hours which got multiple others from the diabetic online community involved. It was nasty, it was ugly, it was awful.
It all stemmed from the fact that I said that one point lower was our “call the ambulance” number.
Today is World Diabetes Day. It is the one day of the year that has been internationally recognized as the diabetes awareness day. All day, my social media accounts have been bombarded with awareness efforts, and it is truly amazing to watch the community come together over something so important.
I issued a call to action on my Facebook page, urging my friends and family to wear blue (the officially recognized color) in support of the diabetics in their life, and take a photo of it. The response has been so touching.
Today the Diabetic Online Community and the Food and Drug Administration came together and had open discussions about diabetes care, daily life, struggles, shortfalls, and hope.
Why is this a big deal worth blogging about?
Because this meeting is unprecedented. The FDA has always been viewed by many as a cumbersome, slow-moving, necessary evil of diabetic life. The fact that the FDA was so willing and open to meeting with key members of the diabetic community is incredible.
I love meeting other type 1 diabetics in person. Growing up, I only knew of a couple kids in my school who had T1, and I wasn’t friends with most of them. One I was, but all I knew is that his pancreas sucked (because he had a t-shirt that said it) and sometimes he’d have to take a break from playing tuba to eat something. Even now, I know only a handful of T1’s in my city and rarely see or talk to any of them.
So when I have the opportunity to meet another T1, I’ll do almost anything to make it happen.
This is Jade. She’s had T1 for 13 years, having been diagnosed several years after her brother was. Yet she’s a DJ for WRIF out of Detroit, on top of being a wedding DJ on the side.