Tag Archives: healthcare

#DBlogWeek: They Don’t Care About You

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Check out my other #DBlogWeek posts here. Learn more about #DBlogWeek here.

Today is my fourth post for #DBlogWeek. Here’s today’s topic!

Most people who live with a chronic illness end up with a lot of experience when it comes to dealing with healthcare. How would you improve or change your healthcare experience? What would you like to see happening during medical visits with your healthcare team? How about when dealing with your health insurance companies? What’s your Healthcare Wish List or Biggest Frustration? Today is the day to share it all!

I’ve discussed the insane cost of my supplies here, and I’ve also written about how Obamacare saved my life. However, I’ve mentioned a little more quietly that I was hoarding supplies all last year.

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So here’s what I’ve discovered in my short time of being type 1 and dealing with lame adult things like insurance companies.

  1. Know what your deductible is and how long it will take you to meet it. Sometimes this can take a little estimating, but it’s worth figuring up if your work/insurance offers more than one deductible level like mine does. I went for the higher premium/lower deductible plan this year because I am able to hit a $1000 deductible in 2 months time – and that made the overall year’s cost lower than the seemingly cheaper $1500 deductible plan.
  2. Never stop hounding. Your supply company is at your mercy, not the other way around. If you know it’s authorized, or you’re supposed to have your shipment on a certain day and it isn’t there (AHEM, Solara), hound them. Email them every day. Call them twice a day. Ask for supervisors. This is your LIFE on the line – and you are your own biggest advocate. They don’t care about you, so you have to do everything in your power to get what you need.
  3. Know and accept that you may have to choose a job based on insurance. This is a reality we have to face. The state of American healthcare today means that we have to do whatever we can to have the best opportunity at survival – which means never ruling out the fact that your company may change their insurance to something completely terrible (as my husband’s did this last year) and you may need to look for a new job with better insurance. Dear America, please stop sucking and revolutionize healthcare a la Australia or Canada, please!
  4. If your medical care team isn’t working for you – switch! My initial misdiagnosis led me to seek other options for care, and that ended up being in my best interest. I found a doctor who trusts my judgment and listens to what I want, and we work together to find the best treatments for me. I can’t say enough about him and I wish everyone had a doctor as great as mine!

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I hope this helps someone in some way!

Read more posts for #DBlogWeek here.

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Filed under #DBlogWeek, Insurance

Obamacare [Sort of] Saved My Life

Tomorrow I turn 26 years old and I officially become too old to be covered under a parent’s insurance policy per Obamacare.

I’ve known it was coming for a very long time. I remember sitting in the Bigelow cafeteria at Western Michigan University at 19 years old and healthy, with my husband (who was my fiancé at the time) and watching the tv coverage of Obamacare and first hearing about the until-26 provision.


What I didn’t know at that time was that it also covered you even if you are married. I didn’t find that out until a couple days after I was diagnosed at age 22 when the doctor’s office called and told me that my dad’s insurance was going to work for my bills. Unbeknownst to me, he had kept me on his insurance. I bawled and bawled. Thank goodness he had!

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Filed under Insurance, Real life

The Cost of Living

The other day I saw an article in Time saying that The United States is the most expensive place in the world to live with type 2 diabetes. It got me thinking that I haven’t discussed the financial burden that comes with being diabetic.

This is a standard bottle of insulin. Everyone’s usage varies, but I usually use 1 bottle per month. Being type 1 diabetic, I must take insulin every single day or I will die. So how much does insulin cost?

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Filed under publicity, Real life

Dear Tony

About two weeks ago, I had the lowest blood sugar reading I’ve ever had, in the middle of the night. It was scary of course, but my husband had it under control and we survived. I posted a photo of my meter showing the number on my twitter and expressing my thankfulness for being alive. I then received a tweet in reply to it from a guy named Tony who is an ambulance driver. Tony and I proceeded to get into a heated argument over several hours which got multiple others from the diabetic online community involved. It was nasty, it was ugly, it was awful.

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It all stemmed from the fact that I said that one point lower was our “call the ambulance” number.

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Filed under Real life, Support system