Tag Archives: obamacare

Signing my Death Certificate

I seem to make a lot of enemies on my Twitter. I suppose after having one for as long as I have (I was part of TWTTR’s beta, all the way back in 2006!) I shouldn’t be surprised, but, I figured I was done with twitter drama back when I dealt with Tony

However, just the other evening, I misread the tweet of a Representative from Minnesota about repealing the Affordable Care Act. I mistakenly thought the Congressman was stating his support for repeal, which directly threatens my well-being with the potential loss of the pre-existing conditions clause. I retweeted the tweet, saying that he was signing my death certificate. 

Very quickly, it was pointed out to me that I misunderstood his tweet, and everything was rectified between myself and Congressman Ellison. All good there and everyone who tweeted me to tell me of my mistake were all very nice about it. 

However, the next morning I woke up to this tweet in response to mine to the Congressman. 


Basically, Bob was insinuating that me dying due to not being able to afford medicine due to the repeal was a worthy sacrifice. 

I quickly tweeted Bob, asking if he was making a joke in bad taste, and then went in to work. When I checked my phone later in the day, he hasn’t responded, and had actually DELETED the tweet he directed at me, so I decided to poke the bear. I tweeted him again, attaching a screenshot of the offending tweet. I even told him I was reminding him of how disgusting his tweet was. I followed up that tweet with this one. 


Bob didn’t respond. Instead, he blocked me.  

He chose to be a coward rather than apologize, but I expected it. Anyone who has the nerve to spew something so disgusting online and not own up to it must be a coward. And honestly, I’m not all that angry about it. People will be horrible to others on the internet because they can hide behind the relative anonymity of it all. 

And as I saw someone tweet earlier this week about the possible ACA repeal, I can’t make people care about other people. But, I can sure as hell try. 

So here we go. 


My name is Abby, and at age 22, I was diagnosed with an incurable autoimmune condition. Pre-Obamacare, I was uninsurable. By repealing the ACA with no replacement, specifically without provisions to protect those with pre-existing conditions, I could be forced to choose between life-saving medication and basic necessities like food and rent. 

It doesn’t matter if you identify with the Republican, Democrat, Wig, Green, Tea, Jedi, or any other political party. 

If you identify as a HUMAN, you should want to help your fellow humans. And leaving #the27percent of Americans with pre-existing conditions to die isn’t how you do that. 

We are vulnerable and scared. So please – think of us. Call your local Congressman. Help those who already struggle to live. 

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Filed under Insurance, Real life

#DBlogWeek: They Don’t Care About You

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Check out my other #DBlogWeek posts here. Learn more about #DBlogWeek here.

Today is my fourth post for #DBlogWeek. Here’s today’s topic!

Most people who live with a chronic illness end up with a lot of experience when it comes to dealing with healthcare. How would you improve or change your healthcare experience? What would you like to see happening during medical visits with your healthcare team? How about when dealing with your health insurance companies? What’s your Healthcare Wish List or Biggest Frustration? Today is the day to share it all!

I’ve discussed the insane cost of my supplies here, and I’ve also written about how Obamacare saved my life. However, I’ve mentioned a little more quietly that I was hoarding supplies all last year.

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So here’s what I’ve discovered in my short time of being type 1 and dealing with lame adult things like insurance companies.

  1. Know what your deductible is and how long it will take you to meet it. Sometimes this can take a little estimating, but it’s worth figuring up if your work/insurance offers more than one deductible level like mine does. I went for the higher premium/lower deductible plan this year because I am able to hit a $1000 deductible in 2 months time – and that made the overall year’s cost lower than the seemingly cheaper $1500 deductible plan.
  2. Never stop hounding. Your supply company is at your mercy, not the other way around. If you know it’s authorized, or you’re supposed to have your shipment on a certain day and it isn’t there (AHEM, Solara), hound them. Email them every day. Call them twice a day. Ask for supervisors. This is your LIFE on the line – and you are your own biggest advocate. They don’t care about you, so you have to do everything in your power to get what you need.
  3. Know and accept that you may have to choose a job based on insurance. This is a reality we have to face. The state of American healthcare today means that we have to do whatever we can to have the best opportunity at survival – which means never ruling out the fact that your company may change their insurance to something completely terrible (as my husband’s did this last year) and you may need to look for a new job with better insurance. Dear America, please stop sucking and revolutionize healthcare a la Australia or Canada, please!
  4. If your medical care team isn’t working for you – switch! My initial misdiagnosis led me to seek other options for care, and that ended up being in my best interest. I found a doctor who trusts my judgment and listens to what I want, and we work together to find the best treatments for me. I can’t say enough about him and I wish everyone had a doctor as great as mine!

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I hope this helps someone in some way!

Read more posts for #DBlogWeek here.

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Filed under #DBlogWeek, Insurance

Obamacare [Sort of] Saved My Life

Tomorrow I turn 26 years old and I officially become too old to be covered under a parent’s insurance policy per Obamacare.

I’ve known it was coming for a very long time. I remember sitting in the Bigelow cafeteria at Western Michigan University at 19 years old and healthy, with my husband (who was my fiancé at the time) and watching the tv coverage of Obamacare and first hearing about the until-26 provision.


What I didn’t know at that time was that it also covered you even if you are married. I didn’t find that out until a couple days after I was diagnosed at age 22 when the doctor’s office called and told me that my dad’s insurance was going to work for my bills. Unbeknownst to me, he had kept me on his insurance. I bawled and bawled. Thank goodness he had!

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The Cost of Living

The other day I saw an article in Time saying that The United States is the most expensive place in the world to live with type 2 diabetes. It got me thinking that I haven’t discussed the financial burden that comes with being diabetic.

This is a standard bottle of insulin. Everyone’s usage varies, but I usually use 1 bottle per month. Being type 1 diabetic, I must take insulin every single day or I will die. So how much does insulin cost?

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Filed under publicity, Real life