I’ve had my insulin pump for 3.5 years now. I got the Minimed 530G in December 2013 when it was still very new. The entire time, I’ve had one pump – my black one named Artemis.
Unfortunately, over the Fourth of July weekend, I noticed a severe crack in Artemis, and was forced to call Medtronic for a replacement, since I’m still under warranty. Cracks can and do happen with pumps, especially since they’re worn 24/7/365 for 4+ years, and Medtronic customer service agreed to replace my pump without a fuss.
The problem is, the only replacement pumps they had in stock were pink. Now, I like pink well enough, but this new pump is Pepto Bismol Pink.
I hate it so much. However, it isn’t broken, so I guess I can deal with it until I upgrade, probably at the end of the year. So for now, I have an ugly pink pump. Good thing it stays in my pocket most of the time!
UnitedHealthcare reached an agreement with Medtronic to become the preferred, in-network durable medical equipment (DME) provider of insulin pumps, effective July 1, 2016. (Source)
Even if you and your doctor decide a different company’s insulin pump is right for you, you won’t be able to get it through UnitedHealthcare unless you pay out of pocket for it, because their preferred company is now Medtronic. This is kind of like how the insurance companies currently dictate the brand of meters and test strips you’re able to get.
And it’s bad news bears for those with T1D and UnitedHealthcare.
When an insurance company dictates my therapy, they’re possibly inhibiting my quality of life. If I have to be attached to a medical device 24/7 for 4 years, I want it to be 1) something I like and 2) something that works for me. And my diabetes is not the same as others’ diabetes, and pumps are not one-size-fits-all.
I appreciate Tandem immediately issuing a statement. Their CEO is quoted in the image below, and I couldn’t agree more.
If this is the new direction medical insurance and healthcare is going, then it’s going to get really, REALLY bad for us. It’s not like I can very easily (if at all) choose a different insurance provider that works with the pump company I prefer!
So what do we do?
Well, I’m making as much noise as possible on social media. And a lot of others are too. I’m tweeting with the hashtags #mypumpmychoice and #patientsoverprofits and tagging UnitedHealthcare in those tweets. I’m sending information on this change to every diabetic I know so they can make noise too.
It may be a dull roar right now, but this is very quickly blowing up. I’m hoping for a firestorm, and for UHC to realize how asinine, degrading, and greedy their new policy is.
I reached a new level of low blood sugar last night – not in terms of actual mg/dl number, but in the events that transpired.
When I went to bed last night, my blood sugar was a little high but on its way down. I woke up twice to correct for the low in the night, eating a total of three rolls of smarties.
Then at 3am, my husband rolled over and woke me up, complaining that both my Dexcom and my Enlite cgms were alarming (because I’m running both at the moment for a future blog post). In my low and half-asleep stupor, I yelled at him that I had already eaten a bunch of smarties, before I finally rolled out of bed to get a glass of milk.
I made it to the kitchen, tested my blood sugar (72) and calibrated both cgms. I grabbed the chocolate milk and began pouring it into a glass. But I started to feel weird, like I was going to pass out. I raised the glass up to my lips and immediately it fell out of my hands and spilled all over the counter, the floor, my dexcom and myself. The room was spinning. I stumbled and sat down on the floor of the kitchen and mustered up enough strength to yell for my husband.
Allen jumped out of bed and, seeing what had happened, quickly poured me a new glass of milk. He got a towel to clean up the mess, and also grabbed his phone to snap a picture of the mess, because he knew I’d want it for my blog.
Meanwhile I sat in a ball on the floor, drinking my milk and trying not to cry. I was so embarrassed that I had lost control like that, especially when I wasn’t even all that low! But every low is different and diabetes is still unpredictable. I’m just thankful that the cgm technology I am lucky enough to have did its job and woke Allen up.
Having been diagnosed with type 1 diabetes at age 22, I was thrust into a whole new world in my already established life. I was married, freshly graduated from college, working as a low-level manager at a big box store. For those first 6 months or so, I was completely on my own in this new reality. Any time I tried finding info on what to expect as a newly diagnosed adult T1, I’d only be able to find things parents had written about their newly diagnosed kids, or adult T1s who had been diagnosed as kids. There are so many things I wish I would have known, so I’ve compiled them into this list.
The Enlite CGM system was the reason I ended up getting the Medtronic Minimed 530G as my first insulin pump in December 2013. I really liked the idea of only having to wear one device on me at all times. And the Dexcom wasn’t compatible with the pump I really wanted, the Tandem T-Slim. So I ended up trusting my endo and went with the 530G with Enlite.
A few months after receiving my pump, I heard about Nightscout for the first time. It was a Dexcom exclusive movement in the early days. I became a lurker on the CGM in the Cloud Facebook page, waiting anxiously for the day that Nightscout would work with my Enlite. And finally at the end of 2014, I was notified that Nightscout for Enlite had been born and was testing. It took me a few months to get the supplies, but eventually, I was in the Cloud with a rig of my own!
The other day I saw an article in Time saying that The United States is the most expensive place in the world to live with type 2 diabetes. It got me thinking that I haven’t discussed the financial burden that comes with being diabetic.
This is a standard bottle of insulin. Everyone’s usage varies, but I usually use 1 bottle per month. Being type 1 diabetic, I must take insulin every single day or I will die. So how much does insulin cost?
Earlier this week, my husband picked me up from work with a surprise – he was taking me to the hot tub place about an hour away for an evening of relaxation. I was thrilled! But it was our first time going since I began using the pump, and I knew it would be an experience to remember.
Now, it needs to be noted that diabetics are advised AGAINST using hot tubs, among other things (you’ll see why soon). However I like to live on the edge and also I feel confident in both myself and my husband’s capabilities to care for me.
I had been fighting a relentless high all day, and when I settled in the tub to begin the hour long soak, I was at about 160. After only 20 minutes, I got out of the tub because it was hard for me to speak. My CGM was reading 126. A finger poke showed I had actually dropped to 55. That’s 105 points in 20 minutes. Of course, the CGM can’t even come close to catching a drop like that fast enough. Luckily I had trusted my instincts and knew to watch for signs of my sugar dropping.
So how did this happen? The heat from the hot water causes insulin to work faster, meaning the glucose in my blood was being taken into my cells at an accellerated rate. I didn’t feel the 55 like I normally can feel my lows due to my senses being overwhelmed by steam and heat and bubbles which is why I only noticed I was low when it was suddenly difficult to form a coherent thought.
All is good though. I enjoyed some relaxation, even when I had to stuff three rolls of smarties in my mouth while sitting in the tub. Tis the life of a diabetic.
Filed under CGM, Real life
There has been a lot of buzz recently regarding Medtronic’s new 640G insulin pump. Released to the public in Australia this week, it is the first insulin pump to suspend insulin delivery when it predicts there will be a low blood sugar event (this differs from the 530G model which suspends when a low blood sugar level is reached.)
But a lot of news outlets have been touting it as an “artificial pancreas.” But is it really?
Filed under CGM, publicity
I took a slightly involuntary break from my CGM. In the middle of September, my Enlite serter got doused in Root Beer and wouldn’t insert correctly anymore. So I took a break, and then it became an extended break, and then I finally got around to ordering a new serter and it came today.
So, for the past month, my BGs probably haven’t been all that great. But sometimes, you need a mental health break. I still tested my sugar, still corrected for highs, still bolused appropriately for everything I ate, didn’t go crazy with bad meals… however I didn’t work nearly as hard to stay within my perfect narrow range.
It was a nice break of sorts, but it’s time to be back at it. So I’m attached to two devices once again rather than one.
In other news, we shot our last session of the year, so I’m in full-on editing mode. Maybe I’ll share some awkward behind-the-scenes photos as I come across them in editing.
It can be a challenge to wear cute clothes while attached to a pager-like device that keeps you alive. However, it is not impossible. So, ladies… here’s a peek into some of the ways I wear my pump and still feel cute!
1. Loud and Proud
On those days when I don’t care who sees my pump or what they think of it, I wear it facing outward, attached to my pocket or waistband. This is great for days when I am with close friends or family, or I am in a hurry and just don’t care. It’s also the best for days when I’m using the Enlite CGM and need quick access to my graph on my pump. (It can also be worn in the pocket with the clip hooked to the outside of the pocket, but this is less accessible).
2. Hidden in Plain View
My Flipbelt has made it where I can wear my pump in the belt over a dress and have many people not even realize it contains a medical device. This has been wonderful for photographing weddings. I can keep my pump on vibrate and feel it much more easily and consistently than if it were in a pocket.
3. Out of Sight, Out of Mind
This is the awesome part about being female and living in a place where it is cold for way too much of the year – I can attach my pump to my bra between the girls. Bustier women can get away with just doing that, but I have to wear a scarf over mine to hide the “pump bump.” This isn’t a very good solution for times when I’m using the CGM, or going out to eat in public, for obvious reasons, but it’s great for the days when I just want to look and feel “normal.”
Here are just a few of the ways to wear a pump and still look and feel great! Be confident and you can rock any style!