Tag Archives: diabetes

oo5. More like Longest Course Ever

Today’s “Longest Day 5K” was absolutely brutal. 


I knew it would be. Any course going through a nature preserve is going to be tough. Yet somehow I was shocked when I rounded the first corner and started my way up a big hill. 

And somehow I was still shocked when I had to tackle puddles, mud, narrow trails, rickety wooden bridges, stairs, and insane heat. 

It didn’t help when the water station at mile 2.3 was handing out warm koolaid instead of water. Really? Ew. 

However, Allen kept watch on me through me sharing my location via iPhone and continually texted me updates as I ran, which showed on my Apple Watch and kept me motivated. 


I had bought an arm band designed for some obscure MP3 player to carry my Dexcom receiver in, to free up some room in my flipbelt. It did the job, but I hated it, so I’m not sure if I’ll use it again or not. When I got sweaty it started to slide around my arm, and when I tightened it, it pinched my skin. It was nice having my Dex right there though, so I didn’t have to keep trying to flip through Apple Watch screens to get to the Dexcom readings. I’d recommend it if you’re wanting something to wear on your arm for Dex. It’s a tight fit to get the receiver in and it sticks out on the end a little but it was very snug and secure. 


My blood sugar was a steady 115 most of the afternoon. An hour before race time, I did a temp basal rate of 60% insulin for an hour because I knew once I started running, I’d drop. I was drifting down so I had a roll of smarties about half an hour before race time. I started the race at 108 and peaked at 140 around the 2 mile mark. I finished the race back near 110. 

So did I beat my goal time for the race? No. I was almost 6 minutes slower than last week. However this course was ridiculously tough, and I still did pretty well. I was 93rd overall for women and 187th out of everyone, out of 244 people. 


So I didn’t do amazing. But I didn’t quit, even when I really considered it at mile 0.75. I kept going even when i was completely by myself and thought I took a wrong turn at mile 2. Even when I thought I was going to puke at mile 3. 


The course was absolutely gorgeous, and that was awesome in itself. Also, this was my first chip timed course so that was a neat experience!


And I got a free beer at the finish, so that was cool too. 

Thanks Chris for somehow convincing me to do yet another 5k. I don’t know how many more you’re going to be able to talk me into, but so far, I’m having fun. 

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Filed under fitness, Running

As 2016 Closes Out

For many people, 2016 was a horrible, no good, very bad year. So many celebrities died. Brexit happened. A very strange US election happened. All among other things.

But for me? 2016 was honestly amazing.

It feels almost like a bad thing for me to be saying that because so many people around me had such a terrible year, but it’s true. 2016 was great in so many ways for me.

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Filed under CGM, LeWayne Productions, Photography, Real life

I’m Okay

I have really been slacking off in blogging. Unfortunately, diabetes doesn’t slack off. Ever. 

I reached my four year diaversary in July without much fuss. I just didn’t have the energy to “celebrate” this year like I have in years past. 

I think I’m dealing with a bit of diabetes burnout. My numbers are still okay, I’m just feeling more.. Blah about the whole process. I’m not nearly as excited to educate others here recently. That’s a weird realization and an uncomfortable thing to be saying [writing], considering that is my entire platform on this blog. But I think we all go through ups and downs and phases. I know I wasn’t always a super vocal advocate so I suppose it would be normal to go through a period of time where I tone down the advocacy a bit. 
Not that I’m any less passionate about the subject. Just less vocal, for now. 


We’ve been very busy on the photography side of the house this summer and it will continue well into the fall as well. 

I’m not ready for summer to end. I’ve been involved in a lot of other activities this summer, including a dodgeball tournament for my work, playing LOTS of Pokemon Go (and even dressing the part), making new friends, hitting up the beach and getting some horrific tan lines, getting my hair colored for the first time in 8 years, and preparing to be part of a pilot program for telecommuting for my work. 


So overall, I’m happier than I’ve been in a long time. I have some of the most amazing friends on the planet. I’m enjoying life and of course not letting diabetes ruin any experience for me, even the beach. 

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Filed under diaversary, LeWayne Productions, Photography, Real life, Support system

#DBlogWeek: They Don’t Care About You

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Check out my other #DBlogWeek posts here. Learn more about #DBlogWeek here.

Today is my fourth post for #DBlogWeek. Here’s today’s topic!

Most people who live with a chronic illness end up with a lot of experience when it comes to dealing with healthcare. How would you improve or change your healthcare experience? What would you like to see happening during medical visits with your healthcare team? How about when dealing with your health insurance companies? What’s your Healthcare Wish List or Biggest Frustration? Today is the day to share it all!

I’ve discussed the insane cost of my supplies here, and I’ve also written about how Obamacare saved my life. However, I’ve mentioned a little more quietly that I was hoarding supplies all last year.

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So here’s what I’ve discovered in my short time of being type 1 and dealing with lame adult things like insurance companies.

  1. Know what your deductible is and how long it will take you to meet it. Sometimes this can take a little estimating, but it’s worth figuring up if your work/insurance offers more than one deductible level like mine does. I went for the higher premium/lower deductible plan this year because I am able to hit a $1000 deductible in 2 months time – and that made the overall year’s cost lower than the seemingly cheaper $1500 deductible plan.
  2. Never stop hounding. Your supply company is at your mercy, not the other way around. If you know it’s authorized, or you’re supposed to have your shipment on a certain day and it isn’t there (AHEM, Solara), hound them. Email them every day. Call them twice a day. Ask for supervisors. This is your LIFE on the line – and you are your own biggest advocate. They don’t care about you, so you have to do everything in your power to get what you need.
  3. Know and accept that you may have to choose a job based on insurance. This is a reality we have to face. The state of American healthcare today means that we have to do whatever we can to have the best opportunity at survival – which means never ruling out the fact that your company may change their insurance to something completely terrible (as my husband’s did this last year) and you may need to look for a new job with better insurance. Dear America, please stop sucking and revolutionize healthcare a la Australia or Canada, please!
  4. If your medical care team isn’t working for you – switch! My initial misdiagnosis led me to seek other options for care, and that ended up being in my best interest. I found a doctor who trusts my judgment and listens to what I want, and we work together to find the best treatments for me. I can’t say enough about him and I wish everyone had a doctor as great as mine!

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I hope this helps someone in some way!

Read more posts for #DBlogWeek here.

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#DBlogWeek: Please Don’t Say…

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Check out my other #DBlogWeek posts here. Learn more about #DBlogWeek here.

Today is day three of #DBlogWeek! Here’s today’s topic:

Many advocate for the importance of using non-stigmatizing, inclusive and non-judgmental language when speaking about or to people with diabetes. For some, they don’t care, others care passionately. Where do you stand when it comes to “person with diabetes” versus “diabetic”, or “checking” blood sugar versus “testing”, or any of the tons of other examples? Let’s explore the power of words, but please remember to keep things respectful.

Am I a person with diabetes? Am I a diabetic? There are a whole bunch of articles discussing the differences, what is proper, etc.

Here’s my take: I don’t care if I’m described as a person with diabetes or as a diabetic. But that’s because I have bigger fish to fry.

do care when people say I’m “suffering from diabetes.”

Yes, I have a chronic, as-of-yet incurable autoimmune disease. But is this the face of someone who is suffering?

No. No, it isn’t.

So please, be mindful of your wording when it comes to that. I am not suffering, so please don’t say I am! 🙂

Read more posts for #DBlogWeek here.

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#DBlogWeek: Over-Teched

diabetesblogweek7

Check out my other #DBlogWeek posts here. Learn more about #DBlogWeek here.

Today’s #DBlogWeek topic is:

We think a lot about the physical component of diabetes, but the mental component is just as significant. How does diabetes affect you or your loved one mentally or emotionally? How have you learned to deal with the mental aspect of the condition? Any tips, positive phrases, mantras, or ideas to share on getting out of a diabetes funk?

This is so timely for me because I just took a couple short technology breaks last week. One was because my husband and best friend both took me to the Prom!

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Okay, so it was an adult Prom, but Allen and I were not allowed to attend Prom in high school, so we went the full 9 yards and got flowers and everything.

And although I’m sure I could have stuffed my pump somewhere, or even gotten a dress with pockets, I decided I wanted to be free for a night of fun with my husband and friend so I switched to MDI for the evening. I did keep my Dexcom on though.

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Then later in the week, I decided I wanted to be free from my pump again, since I had to pull my Dexcom sensor anyway because after almost 4 weeks, it was starting to get pretty wonky. So I took a couple days and went back to old fashioned MDI.

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“So why did you switch back to pens?”, asked a girl on Instagram. While technology is great and I am hopelessly addicted to my cell phone, I do get overwhelmed sometimes. I get frustrated that it’s time to change my site (AGAIN!?!), I get annoyed with the incessant beeping and vibrating of the pump and CGM, and I get tired of having all the things all over my body.

Sometimes I just want to be ABBY, not ABBY+TECH.

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It’s something that [probably] doesn’t make sense to those of you who don’t deal with a medical device attached to your body, keeping you alive, 24/7/365, but to those who go through this like I do, I’m sure I’m not alone. Diabetes burnout is real, and so is technology burnout. For me, occasional tech breaks help me avoid both of these burnouts.

Read more posts for #DBlogWeek here.

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Paper Cuts!

I work in an office. Although I do the majority of my work on the computer, I do have to print things out occasionally, and somehow I end up giving myself paper cuts with an embarrassing level of frequency.

  
I saw this article on Healthline and it made me laugh. I had never thought to test my blood sugar using a paper cut, but I will have to now! Check it out: 29 Things Only A Diabetic Would Understand 

Anyone else a total klutz with paper like I am? Please tell me I’m not alone!

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Sleeping Through Lows

I don’t get a full night’s sleep. Ever. 

  

It comes with the territory, really. Diabetes doesn’t play nice during the day, so why would it at night? Every time I wake up in the night, I immediately take stock of my body. Am I dizzy? Are my extremities numb? Those are a couple of my sleepy-brain low blood sugar symptoms. 

In all honesty, I should be waking up more in the middle of the night. Not because of a low blood sugar, but rather to check my blood sugar. 

Night checks are one of the best ways to lower your A1C. It doesn’t make sense to ignore your bg overnight. After all, you spend 16 hours awake, bending end over end to make sure you’re within range, and then just disregard it for 8 hours? Sounds like a recipe for disaster. 

Its easy to think “My blood sugar is fine through the night or else I’d wake up more often!” But that is simply not true. According to this article the average diabetic doesn’t wake up to 75% of their low blood sugars. That is scary! Yet I know it’s true, because even when I have the Dexcom screaming in my ear for 3 hours straight, I often times don’t wake up. 

I’m currently on a CGM break, which I usually do every couple of months, so I’m flying blind every day, unaware of highs and lows unless I’m frequently testing or manage to feel one when it gets really bad. Two nights in a row, I’ve woken up in the mid-50s. 

  
The CGM technology is so wonderful for helping keep track of yourself overnight, but I really need to put in more effort to make my overnight numbers better if I want to reach my A1C goals. 

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Don’t Cry Over Spilt Milk – Unless You’re Low

I reached a new level of low blood sugar last night – not in terms of actual mg/dl number, but in the events that transpired. 

When I went to bed last night, my blood sugar was a little high but on its way down. I woke up twice to correct for the low in the night, eating a total of three rolls of smarties. 

Then at 3am, my husband rolled over and woke me up, complaining that both my Dexcom and my Enlite cgms were alarming (because I’m running both at the moment for a future blog post). In my low and half-asleep stupor, I yelled at him that I had already eaten a bunch of smarties, before I finally rolled out of bed to get a glass of milk. 

I made it to the kitchen, tested my blood sugar (72) and calibrated both cgms. I grabbed the chocolate milk and began pouring it into a glass. But I started to feel weird, like I was going to pass out. I raised the glass up to my lips and immediately it fell out of my hands and spilled all over the counter, the floor, my dexcom and myself. The room was spinning. I stumbled and sat down on the floor of the kitchen and mustered up enough strength to yell for my husband. 

Allen jumped out of bed and, seeing what had happened, quickly poured me a new glass of milk. He got a towel to clean up the mess, and also grabbed his phone to snap a picture of the mess, because he knew I’d want it for my blog. 

    
Meanwhile I sat in a ball on the floor, drinking my milk and trying not to cry. I was so embarrassed that I had lost control like that, especially when I wasn’t even all that low! But every low is different and diabetes is still unpredictable. I’m just thankful that the cgm technology I am lucky enough to have did its job and woke Allen up. 

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Filed under CGM, low blood sugar, Real life, Support system

Frankensensor! 

It’s spooky. It’s weird. It’s gross. It’s the Frankensensor!

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Filed under CGM